SO! More adventures in the land of Leo. If you follow me on Twitter, you can probably skip most of this. It’s just more of the venting. And maybe slightly more explanation than I give in 140 characters. Times a thousand, since that’s roughly how many tweets I spew out after each and every doctor’s appointment. But! Spoiler?
I am done trying to figure this out with the doctors. Just … I’m done. I mean, unless it gets really really really bad again. (OMG PLEASE DO NOT GET REALLY REALLY REALLY BAD AGAIN.) They are providing none help. Every improvement we’ve seen in Leo has been by MY research and experimentation. I feel like a gigantic wang for saying that, but it’s seriously true.
Well, either that, or he has slowly slowly healed over time and I had nothing to do with it. But I wouldn’t suggest suggesting that to me, because I’m cranky. All I eat is oatmeal and tears. And not even tears anymore, because who knows what’s in those. Probably fluoride.
HAHAHAHA. I just typed up the whole story! Over 1000 words’ worth! Then I tried to read it back, and I just couldn’t. Maybe I just needed to write it all out beginning to end or something? Closure? Who knows. What I DO know is that none of you needed to read that. Well, maybe some other woman who is googling around the whole internet trying to figure out what’s going on with her baby might need to read it, but I already deleted, so I AM SO SORRY CRAZY LADY. If you come over to my house I will tell you the whole story and make you a nice pot of water and peas or something. Maybe we’ll add salt if we’re feeling fancy.
I’m just so ready for this to be over, you guys. This has been the most frustrating and drawn-out experience of my life. I honestly and truly cannot think about other things! Well, when he’s doing badly. When he’s doing WELL, I’m all LA LA LA WE HAVE FINALLY FIXED THE PROBLEM!
You should see my reaction when he next has a bad diaper. Oh, it is not pretty, you guys. It is not pretty at all. And then I do the super healthy thing and take it out on everyone around me.
But we’ve been sans (visible, anyway) blood in the diapers for over three days now. I added back a few vegetables that should be low enough in the salicylates for him to tolerate them. I might start some digestive enzymes soon to see if that helps him at all. I don’t suspect we’ve seen the last of the blood, but I do know what I have to eat to make it go away again. I figure I’ll keep pushing the boundaries of what I can eat and maybe by New Year’s I’ll be able to eat something crazy! Like plain chicken!
I just know I’m done going to doctors and saying, “I’m pretty sure I’ve figured out what is irritating him and I’ve stopped eating it and now he is doing better. Do you think he will outgrow this?” only to have them tell me they’ve never HEARD of what I’m telling them is going on.
Look, I will admit, I don’t think he has a TRUE salicylate sensitivity. I think salicylates irritate the GI tract, and I was ingesting dairy and soy and whatever the actual allergen was that initially caused the allergic colitis, and then we loaded him up on salicylate-laden ranitidine syrup (peppermint flavoring? salicylate PARADE) and it did a bunch of damage. Damage that has slowly but surely begun to heal over the last two months. I think removing those irritating foods from my diet has done him WORLDS of good. I’m not trying to diagnose him with some rare, ridiculous, zebras-not-horses disorder. Mostly I’m telling the doctors this because I think there’s a chance it MIGHT help other women breastfeeding babies with allergic colitis. Hey! Look into food chemicals! They might be continuing the irritation!
Really. That’s ALL.
But instead, they just tell me they’ve never heard of it. Then they forget about us the second we walk out the door. And then another woman walks in with the same problem, and no one can tell her what is wrong, because that thing they’ve never heard of? THEY WOULD HAVE JUST HEARD OF IT IF THEY HAD BEEN LISTENING.
(I’d like to add that our general pediatrician DOES think I’m onto something. Or else he is just familiar with my brand of crazy and knows I won’t shut up about this and is nodding along politely. I don’t really care which it is, I WILL TAKE IT.)
I don’t even know where I’m going with any of this. I guess I needed to get it all out. Put it out there on the internet, however NOT SUCCINCT it may be, just in case. My little ribbon on the internet for salicylate sensitivity awareness.
I do want to thank each and every one of you who has listened to me vent about this, either over Twitter, or IM, or the phone, or email, or in person — you have all held me up through this, and I would have crashed and burned long ago without the encouragement you’ve given me. I KNOW it is all I ever talk about anymore, and I cannot wait for the day this is just some awful, awful memory that I can look back on and through the fog of hindsight can determine I was probably overreacting and overthinking and overdoing and overtrying and overeverything. Ing.